Friday, March 27, 2009

back again!

So wednsday I was back at grossmont hospital. I went for an appointment at noon for an appointment with my nurosurgeon, because I found more bumps on my right said of my head. He saw me had a cat scan ordered and said to see him tomorrow(thursday) at his office on frost street, with the scans. So I was at home about to eat, and the nurosuergeons office called and said to come to the er at grossmont right away. All I thought was oh great here we go again.

The bumps had felt the same as the other ones so I was already expecting surgery again(, and what do you know) that's what happened. It wasn't what I expected though. I figured more tumors, but it actually turned out to be blood clots. So yesterday( thursday) I had another craniotamy to remove them. and yet again I woke up right after the procedure., then the fun part. I had to lay in the gurney for an hour and a half while they got a room ready for me. Unfortunately I now have to share a room, but at least I am away from the screaming lady. And actually my roommate works at Albertson's, so we are kind of rivals. but that is pretty much it for now. Updates soon to come. Have a great day for me, and talk to you soon.

your pal,
HULK (a.k.a. chris)

Tuesday, March 24, 2009

well I got my pet scan back today. It looks like I have mor tumors growing in my head! The report sYS THt there is one growing on the left side of my head between my shunt and the midline of my brain. stARTING on sunday though I started feeling bumps above my right ear. today i feel them about 1/4 or 1/2 inch forward and about to the base of my skull. I see my nuerosurgeon tomorrow, and we will see what the plan is tomorrow. the bumps are squishy like the last time so I just assume they are tumots to. the good news is my skull is in. rhe bad news, I might have to have it remade now. But I will let everyone know tomorrow. ttyl, and take care everyone.

your pal,
Hulk( a.k.a. chris)

Friday, March 20, 2009

pet scan

so I just got back from my pet scan that almost didn't happen. Yesterday when I called to make an appointment, the lady told me my part of the payment would be $1400. I told her that was fine and she scheduled the appointment. So I went in today, filled out the paperwork and went to give it to the receptionist. She then said "okay that will be $1400." I was in schock! Apparantly when the scheduler told me the price she was telling me that was how much I would have to pay at the appointment, because my deductible was not made. Luckily my dad talked to them and we only ended up haveing to pay $100.

then they took me back and took my vitals. Then they gave me a quick I.V.. They then drew blood for a blood suger test, and then the bad part. They flushed the line with saline. It wouldn't be that bad, but after my first surgery for my meddulablastoma tumor I was paralyzed on my right side from the extra fluid in my brain. So th ey were supposed to give me lemon drops took keep my mouth moist. Instead they gave me saline drops. So now everytime they flush my lines I can taste it in my mouth. Then the fun part, I was infused with radioactive glucose(suger),(So who knows maybe I will become TI hulk after all). After that I was left in a room for an hour to relax and let the suger go throughout my body. I layed there and slept while listening to my country music. After the hour, they took me back and did the scan. And that's that! As soon as I get the results I will let you all know, until then have fun and live life!

Tuesday, March 17, 2009

no news yet!

I just wanted to write and say thank you for everyone's love and support. It makes it a lot easier to go through when you know you have so many people praying, rooting, and supporting you. It means the the world to me. I guess I am supposed to get a pet scan to assure there is no cancer anywhere else, but they are waiting for insurence approval( so ridiculous). Anyway I will let every one know the results and everything going on with me. thanks again and god bless,


hulk (a.k.a. chris)

Saturday, March 14, 2009

cancer!!!
so for everyone who doesn't know, my cancer has returned after 11 years remission. It is not the same one. I have been diagnosed with angeo sarcoma. The oncologist believes that it is an onset of my radiation treatment from before. I saw the nuerosurgeon and the oncologist today.

At the nuerosurgeons today I found out that I am just waiting for my new skull to be made. For those of you who do not know, The tumors in my head pretty much diseased part of my skull so it was removed. I would sayit was a big chunck of the right side, yet I am not exactelly sure. Anywho, the nuerosurgeon is having a plastic skull made for me to place where there is just brain. Some of you may question if there is even a brain there,(you know who you are) but i can assure you there is.At the oncologist today I found out that we are waiting to start treatment until i receive(i before e except after c) my new skull.


The onc has diagnosed me with a undefined sarcoma, but believes it is an angeo sarcoma. The treatment plan so far is a drug called anvient, or something like that. It is a drug that attacks only the cancer cell itself. also I will probably have a small dose of some sort of chemotherapy.i will have a pet scan on monday to make sure the cancer has not spread anywhere else in my body. So that is pretty much everything for now. Thanks for all the support I have and may continue to receive through this whole process. It means the world to me.

love you all,
chris